陌生事物》的加滕-马特拉佐如何帮助人们了解裂隙性颅骨发育不良症

Kyle Simmons 18-10-2023
Kyle Simmons

裂隙颅骨发育不良是一种罕见的不治之症,每一百万人中就有一个,源于基因突变。 这种功能障碍几乎不为公众所知,直到本周,在Netflix剧集《怪事》中扮演达斯汀-亨德森的14岁演员加滕-马塔拉佐透露有这种功能障碍,此前他已经在《怪事》中这样做过。小说。

症状多种多样,大多数与骨骼和牙齿发育有关,但最常见的是携带者的锁骨发育不全。 因此,他们的肩膀通常较窄,弯腰,并可能以不寻常的方式与胸部相连。 身材矮小,手指和前臂短小,牙齿排列不整齐,有额外的牙齿,在某些情况下,还有极端的,耳聋,运动困难,甚至骨质疏松症都可能因裂隙颅骨发育不良而发生。

发育不良通常是遗传的,但在某些情况下--如Gaten的情况--它只是由自发的基因突变发生的。 Gaten的情况非常温和,对他影响不大,但这种疾病可以走向极端,正如这位演员在接受《人物》杂志采访时所说。

该演员与该系列的其他儿童演员在一起

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并非偶然,加滕在剧中的角色也发现了这种疾病。 这位演员自然而然地承担了自己的病情并被接受,这让其他患有裂隙颅骨发育不良的人在他们罕见的情况下感到不再孤独和孤立。

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© 图片: publicity/Getty Images

Kyle Simmons

Kyle Simmons is a writer and entrepreneur with a passion for innovation and creativity. He has spent years studying the principles of these important fields and using them to help people achieve success in various aspects of their lives. Kyle's blog is a testament to his dedication to spreading knowledge and ideas that will inspire and motivate readers to take risks and pursue their dreams. As a skilled writer, Kyle has a talent for breaking down complex concepts into easy-to-understand language that anyone can grasp. His engaging style and insightful content have made him a trusted resource for his many readers. With a deep understanding of the power of innovation and creativity, Kyle is constantly pushing boundaries and challenging people to think outside the box. Whether you're an entrepreneur, artist, or simply seeking to live a more fulfilling life, Kyle's blog offers valuable insights and practical advice to help you achieve your goals.